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Objectives: To assess the parental knowledge about thalassemia.
Study design: A descriptive study.
Place & duration: The study was carried ouconducted at the Thalassemia
Centre of The Children’s Hospital & the Institute of Child Health (CH&ICH)
Multan, Pakistan during 1st January 2015 and 30th July 2015.
Methodology: The Data was collected from the 120 registered
Thalassemia major patients’ parents at the Thalassemia Centre at the
CH&ICH, Multan. The participants of the study were the parents of the
enrolled thalassemia children in the center. The data was collected using
a structured interview schedule. Collected data analysed using
descriptive statistics and presented in frequency and percentage.
Results: The majority of the respondents 107 (89.2%) out of 110 believed
that thalassemia is a blood disease, which can be identified by a blood
test . Sixty (50%) respondents believed that thalassemia is an inherited
disorder, but 60(50%) respondents either had poor or no knowledge
about the disease. Alarmingly, 35(29.2%) respondents were of the
opinion that the patient can survive if left untreated and another 55
(45.8%) respondents thought thalassemia can be treated with medicines.
Conclusion: The results of the study concluded that parents knowledge
of disease , treatment and prevention was inadequate. The study
recommends the need of organizing seminars, public lectures for both
thalassemic families and general public in order to enhance their
knowledge regarding thalassemia disease and prevention.
Kamran Ishfaq , Johar Ali, Tanveer Ahmad, Safia Zainab, Salman Bin Naeem. (2016) Assessing Parental Knowledge About Thalassemia , Pakistan Pediatric Journal, Volume 40, Issue 4.
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